Tuesday, July 26, 2011

No more meds?

Ellie is supposed to have a lab draw this week but it's turned into a full appt with her endocrinologist because she's getting so big so quick! We're going to measure her and I can't wait to see how big our little angel is doing! Also, she is weaning herself off her DDAVP this is her DI medicine (DI=diabetes inspidus, this is NOT insulin or even related to that!). Her endo made this prediction a few months ago. Her dose was SO low to begin and now I've 1/2 it. Her "dose", and I use the term loosely because there is no mark to be sure, was approximately 0.0175 mcg. Do you know anything about mcg? Well 0.0175 mcg is not even quite a tear drop and I've 1/2'd that! It's pretty darn exciting. Now I weigh her diapers and measure how much fluid she takes in every day on DDAVP, since she's prone to DI we can NOT stop until we know she's good and she's not going to go back on the meds. I know Dusty and I are just fine with this, a small price to pay for her not being on this medicine. And she may need it some other time, such as if she doesn't get enough fluid and pee's too much, she'll get a little to get her back on track but should go a while without. With DI, you pee A LOT! She's pee's about the amount a "normal" baby would through the night say in 2 hours so you can imagine that we wake up in the morning and she may be laying in a pool of urine (I try to elimate this by changing her when I go to bed and since we get up at 0430 so it's not that often now-a-days). But she drinks a lot and pee's a lot, more than most kids.

Anyway, she's also having a hard time with her tooth. She has two bottom and one top has popped through but the other one is just lingering and taking it's time. She's not upset just uncomfortable, drooly, and has to have something in her mouth at all times and playing with her teeth (which is funny).
See those teefers!
Her lastest accessory... safety first!

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