We're starting to settle in a little more and more everyday. Ellie is a hoot that's for sure. She's definitely developing her personality and it shows even more everyday. I'd say right about now it's more of a spoiled personality ;) She's been extra winey lately, but it could be a tooth. She won't let us feel in her mouth to see. The past couple of days we've had a hard time getting her to drink more than 2 oz at a time (and not taking more than an hour drinking the 2). We're really hoping that it's a fluke so we'll see. We got her enrolled into Tricare up here and then scheduled her a dr's appt for her 1 year follow up. At that appt I had a nice little "cheat sheet" explaining Ellie since birth with all of her medical issues which was helpful (and I'll keep up to date and pass out to who needs it). Apparently there are other children in the area with SOD/ONH too! I asked the pediatrician to hand out my info, I doubt she'll do it but as you all know, I'm serious!
We have her endocrinologist appt coming up and we're trying to get PT, OT, and a feeding therapist going as soon as possible. But #1 on our list now is finding some one watch her while we're at work. Luckily, Dusty has a little more time off work but it's not much and we're scrambling. Dusty called around and found a daycare in her therapy place so hopefully we're comfortable with taking her there otherwise we nervously have to leave her in the care of a nanny that we're looking online for. It will all work out right? Yeah, try reminding a mom who has to give her baby to someone new, it's terrifying!
