I try to keep this blog positive and happy. I try to see the silver lining in all that we have been dealt but I'm feeling a little more annoyed lately than normal.
You see we moved here to get better services for Ellie. By services I mean medical and theraputic and we have better medical services now, but theraputic is lacking terribly! I'm so sick of going and seeing the same therapists every week who haven't worked with a blind infant before. They've gotten better and Ellie has progressed more (after my long email pointing them to new therapy methods) but I feel like there is some one or some place that can get us further than we are now. I'm tired and pissed that I'm always tracking down the next place for us to go or person to see. Why in the hell don't the therapists or doctors or nurses point us in the right direction?!? They get paid for this! Why am I constantly asking for adaptive equipment and not getting responses?
And most of all, WHY ARE WE HERE?!?!? WHY ISN'T ANY PERSON ON OUR HEALTH TEAM HELPING? Sure, they answer questions but why did I track down a feeding clinic in Cincinnati? Why didn't Endo, the pediatrician, the feeding therapist, or occupation therapist mention this to me before!?!?
And if someone could PLEASE tell me what a developmental specialist does I would appreciate it. We've had 2 and we have a referral to a new one and I can't bring myself to make an appt when the previous two had me so confused on their purpose and I felt as though it was a waste of time!
I feel like I'm going in circles and I already don't have enough hours in the day with work (that's a whole new bag of aggravation) so when am I supposed to call and get Ellie into the Help Me Grow program again? When do I have time to focus on all of these referrals, appointments, and new methods? I don't, this is what our "team" gets paid to do so why aren't they doing it?!?
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