Man-o-man does she got it all! Christie, the wonderful daycare provider, called this afternoon and at first all I could hear was a screaming baby, then she said, she won't stop crying. So I go pick her up and she points out a bump on her gums. I know what you're thinking, OH A TOOTH! This is definitely not a tooth but more of a bump. So I take the puffy eyed-tear falling-crying baby and drive her (she finally gets quite!) to the on base peds clinic. Well our peds dr is out so we are referred off base to another dr. I would usually throw a fit (a-duh! my baby is special needs darnit!) but luckily I had heard good things about this pediatrician.
Our pediatrician calls Dr. Azam (yep, I'm going to use her name) and apparently talked to some nurse instead of the Dr or PA. PA comes in and starts talking about Ellie's history. Nothing in her "history" that they got from my pediatrician was correct, as I suspected. So I correct every bit of it and then said here's her story (for those of you who don't know). "Ellie was born 5 weeks premature with gastroschsis, she was on a ventilator for 2 weeks. During her 29 days at Gulf Coast they noticed crazy sodium levels so we were transferred to Shands where they diagnosed her with Diabetes Insipidus, that has to do with sodium not sugar (yes I had to say that), and Septo Optic Dysplasia. She was in the NICU for a total of 35 days. She got broncialitis and two ear infections beginning of January. At the end of January she was diagnosed as blind. On Valentines day she got RSV and was transferred to Sacred Heart and was on life support for a week, then stayed in the hospital for another week while they watched her sodium and changed her medication over to the hormone replacement DDAVP. After that she's been my happy and wonderful baby! Until now..."
PA "So when was the last time her sugar was check?"
Me "She does NOT have sugar diabetes, it's serum sodium and it's only checked by lab draws."
I realize this will forever be my conversations with new doctors/physician assistants/nurses while stationed in Panama City. Sucks for them because I will look at them stupid every time, Diabetes Insipidus is more common then SOD.
I'm pretty sure I scared the PA. Sorry, but brush up... I learned about this in Anatomy and Physiology 2.
The outcome is... she has... (wait for it)... an ear infection, a cyst on her gums, and on top of it all she's teething. Not only do these suck individually, combined they make a super pissed off Elliana. So, ♫ She's got it all ♫
On the plus side, they gave her bubble gum amoxycillen... hmmmm, momma wants some ;)
My goodness! Poor Elli! She just can't win! I hope she feels better! It will go away in time! Just stinks in the mean time for Mommy! Stay strong and get some sleep when you can!
ReplyDeleteWell that's my girl! If she's going to do it she's going to do it right and all the way. On the other hand, until you get a stable Ped. then I am sure that is the conversation that you will have over and over. I have to say that if they don't know what it is that she has, or for that matter what they are talking about, then the deserve to be made to feel like the idiots they are. Love and miss you both much!
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